I recieved a call last night as I was busily trying to get supper ready for company. As soon as I answered it my heart went up into my throat. It was Dr. Graves. The deatailed testing for the Crohns that he ordered had been in the labs for over a week now, and we have been anxiously awaiting the results. "But why is he calling me", I thought immediately. Normally I would hear back from his personal nurse. He started by asking how I was doing, and some other filler questions. My mind was wrapped around just getting to the point of the call, and I knew what that was....the tests. He finally came out and told me that the final test shows that it is Ulcerative Colitis in the small intestine which is just the backwash ileitis which will heal itself in time. The tests were conclusive that Crohns was negative! Praise the Lord!! It was all I could do not to scream on the phone. He said that we will just proceed on as planned with the next surgery which will be the reconstruction. I go in just before Christmas on the 23rd, and we will then talk about scheduling the next surgery. It probably won't be till February or March, but I am just so very happy and thankful that it is certain that I don't have Crohns! I have to take the time to thank each and every one of you for your prayers for me. Know that they have not been in vain!
Now for a quick update of the past couple weeks. My strength has come back pretty much all the way. I am doing very well. I have had a few more problems with my ileostomy, and those times have not been fun! It has been very important to have a backup kit ready in the car, and has been very useful. I just recently made the first ostomy order, and hope that I can find something that works for me. All in time.... A couple weeks ago I woke up with what I thought were some bites on my neck. They hurt though instead of itching, and I kept getting more of them as the week went on. It turned out that I got a mild case of the shingles. I only have 8 pockets that are spread out along my right neck and shoulder. I got an antibiotic started to help with the pain, and also help them not to spread. I can't believe how painful just this small case of them is. It is sharp pain all the way to the bone! I am still fighting them to go away. It just takes time apparently. On Saturday David and I got our Christmas pictures done. I am proud of myself that I am on top of it this year! :) The picture below is a sample. My grandma left to go back home on Sunday. I couldn't begin to tell what a blessing it was to have her here and all her help! She will be missed!
I hope all of you have a wonderful Thanksgiving with friends and family! Don't forget the Lord in the hustle and bustle of the holidays. He is the one who deserves our Thanks!!
Tuesday, November 17, 2009
Thursday, November 5, 2009
Helpless
I grab my Bibile and purse, and head out the door on Wednesday night. I was meeting up with my family at Johnny Carinos for a nice dinner before church. The whole drive in I couldn't wait to see my wonderful husband, and give him a kiss. I just love their bread dipped in the olive oil, but made myself eat only a little, and started my meal with a sald.
That is when it happened. Right in the middle of dinner I started to feel a trickle run down my stomach and onto my leg. I looked over at my husband and said, "I need help...FAST!". I stood up and started to quickly make my way to the bathroom. David snatched my purse and followed behind me as I ran into the bathroom and locked myself in the stall. My skirt was the first thing to come off, then my shoes, and then my underwear. I just stood there for a while and looked down at myself. All I could do was start crying. I felt so extremely helpless it scared me. The plastic seam of my ileostomy had somehow torn, and....well, lets just say it was gross and I felt miserable! I had nothing but toilet paper to help me out. My mother-in-law got me one of the restaurants cloth napkins, and I cleaned up just enough to make a quick exit out the side door, and into the car David had pulled around for me. As soon as he closed my door I started sobbing....it was the worst feeling in the world! He drove very fast and crazy to get me to my moms house (the closest place) where I was able to get into the shower and clean off good. We had a back-up kit in the car with all the stuff to change my ileostomy, so it all worked out ok in the end. Even after I was cleaned up and ok I still found myself with tears running down my face. It was a terrible night, and one I hope to never repeat!
That is when it happened. Right in the middle of dinner I started to feel a trickle run down my stomach and onto my leg. I looked over at my husband and said, "I need help...FAST!". I stood up and started to quickly make my way to the bathroom. David snatched my purse and followed behind me as I ran into the bathroom and locked myself in the stall. My skirt was the first thing to come off, then my shoes, and then my underwear. I just stood there for a while and looked down at myself. All I could do was start crying. I felt so extremely helpless it scared me. The plastic seam of my ileostomy had somehow torn, and....well, lets just say it was gross and I felt miserable! I had nothing but toilet paper to help me out. My mother-in-law got me one of the restaurants cloth napkins, and I cleaned up just enough to make a quick exit out the side door, and into the car David had pulled around for me. As soon as he closed my door I started sobbing....it was the worst feeling in the world! He drove very fast and crazy to get me to my moms house (the closest place) where I was able to get into the shower and clean off good. We had a back-up kit in the car with all the stuff to change my ileostomy, so it all worked out ok in the end. Even after I was cleaned up and ok I still found myself with tears running down my face. It was a terrible night, and one I hope to never repeat!
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