Tuesday, April 5, 2011

Update on me....

I know this has been long in coming, but please believe me when I say that I have had my hands full! :)  3 weeks ago the Lord placed in our hands our first baby boy. Our lives haven't been the same since! Bryan's c-section wasn't even planned till the 23rd, but he decided he wanted to meet us early and I went into labor exactly 3 weeks early. I had him right at 37 weeks. He was still born via c-section, but was perfect! He weighed 5lbs 12oz and was 19 inches long. he has quite a bit of dark hair, and his eyes are dark blue. He lost more than the normal amount of weight for newborns and went down to 5lbs. He's still working is way back up to his birth weight and weighs 5lb 6 now. He is in preemie clothes, and it has been quite a challenge to clothe him. :) Being stuck in the hospital isn't very conducive to doing laundry for an infant who goes through 2-3 outfits a day with only 6-7 outfits total. :) Thank-you to friends and family!!!

David has been so wonderful....just like normal. He always has such a good attitude, and is so willing to help with anything and everything with me and Bryan even though I know he is extremely tired and exhausted! This is his week of vacation time he took off to be home with us, and he gets to spend it in the hospital instead. Not much of a week of "vacation" I will say.

After having another abdominal surgery, I think my body kind of "freaked out" a bit. For days after the surgery I was extremely nauseous and couldn't eat anything whatsoever. I was getting weaker and weaker, and feeling so bad. Doctors didn't really know why I was so sick, but just thought it was from the surgery and that it would just be a matter of time for it to go away. With having a new baby though, and being very sick it was also resulting in me getting zero sleep. I was getting to the point that my body was so tired it wouldn't let me sleep when I had the chance. My doctor and I agreed on Saturday afternoon finally that even though I was still feeling very sick and not eating, it would be better if I could go home to sleep, and stay on some meds at home. So we did. I went home Saturday late afternoon. By the time I got home from the car ride I ran straight to the bathroom almost ready to throw up. I fell in bed, and pretty much stayed there as my body started to crash.

Through the night, I got up over and over spending so much time trying not to throw up and take my anti-nausea. I fell in bed after each time being up. Feeding Bryan was barely even an option for me because I couldn't even sit up long enough to feed him. David was up all night with him and me. He did everything to take care of him, and he even helped me feed him while I laid down since I couldn't sit up. Then it hit. My body started attacking my muscles, and I started having major cramping. If you have had a "charlie horse" before you will kind of know what I mean. It was kind of like that, but 10x worse. It would hit 3-4 major muscles from my feet, calves, toes, thighs, hips, hands all at one time, and the pain would be so much more than I could bare. My head would start spinning and I would start blacking out because the pain was so bad. I would maybe get a 5 minute break between each attack that lasted at least 15 minutes at a time. This was quite wearing on David as I lay there hour after hour crying out in pain as he is each time rubbing and massaging trying hard to give the cramps some relief for even just a short time. He would go from me crying in pain to Bryan crying in hunger, and then back to me. The next morning, I ended up calling my friend Veronica out of church to come help because things kept getting worse, and we needed help. It didn't take long for David and Veronica to realize that I needed to go back to the hospital. David decided this, and then tried for 30 mins to try and get me dressed and in the car, but with no luck. Finally he called and ambulance, and we were rushed to the hospital right away. It just couldn't have worked more perfect with Veronica being there, because we were able to just abandon baby Bryan and leave him in her hands. He had a full day back and forth between all his family who loves him. He ended up spending his first night away at Grandma Rice's house when he was just 6 days old. He did so good! The Lord really has blessed us with a very content little boy! Back in the hospital that night things continued the same till finally I was given a strong muscle relaxer and some morphine but not till around 3 o' clock in the morning. We don't really know why it took them so long to give that to me, but some times it just doesn't make sense the way they do some things in the hospital. Right away when they wheeled me into the ER they started me on a bolster of plain salt water through my IV. I was very dehydrated, and they said that nothing was really going to "help" all the cramping till that electrolyte imbalance was fixed. I still continued to ask every doctor that came in for some kind of a muscle relaxer to give me just a little bit of relief. I got it finally, but not till hours of waiting. After getting some relief, David and I  slept that night for 5 straight hours which was the longest stretch of sleep both of us had had since before I had the baby. The next day they couldn't pump enough fluid, salt water, potassium, magnesium, vitamins, and so much more into me fast enough. I couldn't even take a shower because I couldn't be unhooked for that long. I did find out that one of the main things that through my body down the drain so fast was how low my sodium levels got. The normal counts # is around 140. Mine were around 110, which I guess to what I was told was VERY low.

This all happened Sunday night. They worked and worked and worked through the night Sunday, all day Monday, and through Monday night. By Tuesday, they were really starting to worry when most of my counts were just staying the same, and they weren't seeing any of them come up. I still wasn't eating because of the bad nausea, and continued to be on constant anti-nausea to keep from throwing up. This is when they start to tell me that they are going to have to start giving me PTN which stands for Total Parenteral Nutrition. This was something the doctors always used as a last resort, because it has to be started slowly and then build up in your system, and then once things are doing better it can't just be stopped right away. Basically this meant if they had to start this it would have put into concrete a for long stay at the hospital, which I absolutely dreaded. The doctor told me that morning around 7 about their decision, and my body had just hours to make a change for itself. The 4pm blood draw would be the deciding factor, and if things hadn't changed they would start that night. She left the room, and my heart dropped. My body had only hours left to start making a change by itself which up to this point it had failed to do. I called the nurse in right away and asked for a dose of anti-nausea, and then called my brother-in-law to bring me some food with protein in it and lots of sodium. The doctor had told me that I needed to eat (for a while) a diet very high in sodium. So I did....eggs with Velveeta pored on them with salt added to each bite. Even if I did throw it up I had to try. I had to force food down me all day long with hopes that it would help.

It was a long day of taking anti-nausea, and then eating. I did this at least 4 times before that 4pm blood draw. I also drank as much as I could of just Gatorade and no water. It was of the Lord that when the results of that test came back that evening my levels had come up barely enough for them to "pose pone" starting the TPN. I was so very happy, and made up my mind that no matter how sick I was I would continue to try to eat at least something at every meal. This went on for 2 more days of making myself eat. All my levels in the mean time continued slowly to rise and I continued to feel better and better each day. It was on Friday morning when I woke up that I noticed a huge change. I was hungry!! I hadn't felt "hungry" in over 2 weeks, and any food digested was forced. It was such a good feeling to feel hungry. I made a breakfast order that morning that would have been enough for 3 people! :) Of course I didn't eat it all, but if it sounded good, I ordered it!

The next morning I found out I was going to be able to go home....(again). :) David and I were so excited. We started packing up right away and were ready to go hours before the hospital had released us. It was such a wonderful feeling to come home that night! Bryan was just shy from being 2 weeks old, and we were finally able to bring him home. David had so sacrificially given his weeks vacation time to be with us in the hospital instead of the nice "1st week at home together" we had thought it would be. It was ok though, because we were all home and healthy and just fine now. We were very thankful that the Lord was so good to us!

Maybe I had a few set backs along the way, but we did it! We have our healthy baby boy who is just so dear to us it would be impossible to put into words the love that our hearts have wrapped around him! The Lord blessed with something so precious!


It has been a little over a week now since we have been home, and we are all doing so well! I am off my anti-bio tics and back to nursing again which I am very thankful. Bryan and I miss daddy every day so much, but look forward to him coming home every night! I have to fight over getting to first kiss now! :) Bryan is in a routine of eating every 3 hours almost like clockwork. He has had a few bad nights, but all in all I can't complain because he is a pretty good sleeper and a happy baby! Thank-you Lord once again for your goodness to us!!

Friday, March 18, 2011

Bryan Robert Ronson



In the surgery room fresh out of mommys tummy.

Papa and Bryan

Aunt Katie and Byan

Holding daddys finger just after his first bath.

Im Awake, Im wake

All dressed up looking super cute!

Listening to some tunes.

Friday, March 11, 2011

Baby Shower & Last Month of Pregnancy

My friend Veronica put on such a beautiful baby shower for me. I know that Mrs. Broadwater and my mother-in-law helped her quite a bit to make it so special and nice for me. I am Thankful for you all who worked so hard! I absolutely LOVED it!!!
The chair by mine in the middle was for my mom. I loved having her up there with me! Love her!!

The front entry...it was beautiful! the table to the left in the back was full of scapbooking stuff for people to make me scrapbook pages to put in the baby book. Now I have alot of nice pages that all I have to do is glue pictures on! :) such a good idea!



                                                                                                                                                                                                                             
The food table looked amazing, and all the food was delicious! My sister-in-law made the cake and she did an awesome job! It was chocolate with a heart-shaped filling in each piece of peanut butter cream.....need I say more! :) Just writing about it makes me want some!


Mrs. Simpson has been very special to me. She has really been my personal prayer angel in the past few years, and I love her dearly! She always takes the extra minute when talking with her to really hear everything you are saying and truly care! She did a small devotional at the shower using the letters of Bryans name. It was very special to me! 
And the Games begin!.....
So many ladies showed up to give their support. We all had alot of fun!
This game, everyone was on a team. Spoonful by spoonful you had to carefully go from one end of the table to the other end and fill up a small bottle. The last team to fill up the bottle and drink it all was the winner! (the winning team had a gift baby basket that they gave to me instead of winning theur own prize...so nice!)

This game was one I remembered playing when I was only 10 at my mom's baby shower for my little sister, and I won! Now look at my "little" sister, she's all grown up! Everyone had to tear off a piece of toilet paper the length they thought would fit perfectly around the biggest part of my belly. Some were quite funny! :)

The class of 2003! :) now we are all three having babies all within a month and a half of each other. Its been so fun being pregnant together....although we now are just ready to be done!

Highschool best buds 10 years later! Love you all!

I had to post a picture of my greatest support. My mom (on the left), and my mother-in-law (on the right). They have helped me through so much, and constantly there for me! I love you both dearly!


In the end in was such a good night!!


Now, for just a quick update of this past month. As for little Bryan....he is just doing amazing! My doctor is just amazed at how well he is thriving in the womb. He is putting on weight, and growing strong and healthy. We are just so thankful that the Lord has blessed us with this healthy baby boy! As for me....well, I'm still trudging through these last few weeks of pregnancy. The bigger and stronger and healthier Bryan gets, the more strain it is on my body. If I did not have my PICC line, I think I would have ended up in the hospital under constant care for this whole 3rd trimester. I am very very thankful for the ability to do the health caare at home! We had a bit of a scare last week, and we were very close to the doctors taking Bryan. I wasn't feeling well, and his heartrate dropped for a lengthy amount of time without coming back up. She sent me straight to the hospital and said if it happened just one more time that she was taking him. I started to get very scared! Thankfully, he cooperated and we were able to go home. Just a few days after that, my PICC line messed up again, and I landed back in the hosppital for another 24 hrs. They ended up pulling the old one out, closing that site, and putting a whole new one into the other arm. Everything is good now! :)

Since Bryan is doing so well, and I'm all "pumped" back up with all the good stuff (from hospital stay), and doing pretty well myself, it doesn't look like he will be coming too early. So unless I go into labor between now and my scheduled C-Section (March 23rd), Bryan will continue to grow bigger and stronger! I am very thankful! That is only 12 days away though!!!! So you can look for my next blog update to have pictures of our precious newborn baby boy! YAY!!! :)



Wednesday, February 16, 2011

My Pregnancy the Past 20 weeks....

I can't believe that its been 20 weeks since I last updated my blog. I know each time I say I am going to do better. I have good intentions, does that count? :) Its hard to even figure out where to begin.... I guess the first thing I want to tell you all is that we found out we are having a baby boy. His name is taken from his daddy and grandpa.
                                  This is Bryan Robert Ronson! :)




I am 33 weeks and 2 days today. Bryan just weighed in at the doctors this morning at 5lbs 1oz! He is going to be a chunky little dude! :) Mommy has gained a total of 17lbs as of this morning as well. Pretty good for me I think. My Picc Line as I described in the previous post has been such a blessing to have during the pregnancy. Yes, there are alot of things that come with it like 4 flushes in each site 2x a day, and spending a total of 32 hours each week hooked up to a pump that I carry around with me pumping fluids in, having a home health care nurse come to my house every week to change the dressing and clean around the line (all the adhesive has caused my skin to hate me!), putting up with several times getting a blood clot in the line and trying to get it absorbed, along with several other small things. This may seem like alot, but actually it has been a life saver for me and the baby! It has given me the strength that I need to get through this, and has kept me from being in the hospital a whole lot less than if I didn't have it. It is like anything though. You just learn to live with what you have to live with and have a good attitude about it. Once you get used to something, it just becomes part of life, and you don't think of it as "hard" as others might just hearing about it. It always cracks me up when people say"Oh, I could NEVER handle that", or "I could never live with that"! As if something were to happen to them they would even have a choice. God says he would never give us more than we could handle. (although at times I've thought "Lord, ok, I can't handle this anymore") He's always been there for me though and brought me through those difficult times. I am so thankful to the Lord first, and then to my wonderful husband who has been my ever loving support and companion throughout everything! What a strong and faithful man the Lord gave to me!




I believe from the beginning of my pregnancy I have had 4 hospital stays which have included 4 blood transfusions, and a several other intravenous infusions of different vitamins like sodium and magnesium or whatever else my body is low on. I will probably have one more hospital stay with a blood transfusion before they take Bryan, and then get another one after he is born. This is something else that is also been a "blessing in disguise". Without a colon, my body just isn't capable to absorb all the nutrients it need while "making" a baby. Also being anemic before the fact of pregnancy, and then on top of getting pregnant adding a daily shot of blood thinners, only causes the anemia to get worse. This is the need for the blood transfusions. My body can't keep up reproducing the amount of blood that it needs. Another thing that has come up in this last trimester is a rising level of protein in my urine. My doctor has been watching me closely with this as it is an early sign of preeclampsia. My blood pressure however is doing well.

I just found out today that my tentative scheduled C-Section date is for March 23rd at 7:30am (with a 5:30 arrival!). However, my doctor just told me today because of how things have been going she is planning on probably taking him a little sooner than that. That is just the first date "legally" that could be scheduled with the hospital. Any other date will just be treated as an unscheduled c-section. So, at the very most, I will be having Bryan just 5 weeks from today, but maybe even sooner. By the way, before she would take him any sooner they will do a test to determine if his lungs are ok. This makes me feel good about it. As long as he is ok and healthy, I am ready!! :)  

Just last week I had my baby shower. It was so nice, and so beautiful. Thank-you to everyone who put so much work into it to make it turn out so nice!! It sure meant alot to me!! When I get the picture from it, I will post a few of the best ones. It is nice to know now what I didn't get, and what I still need. David just got Bryan's room painted, and I love it!! The colors are brown and green. I still need to get it decorated though, and everything in it's place. So much to do, and so little time! Jenna took some pregnancy pictures for me that they used at the shower. They all turned out so good!! Here are a few for you to enjoy, and also to see how huge me and Bryan are getting! :) 

I don't want to close without saying a quick thank-you to all of you who continue to pray for me through all of this! I am sorry I have been so bad at updating my blog. I promise to try harder! Especially after Bryan is born. My love to you all!








Thursday, October 7, 2010

14 Weeks Pregnant, and Sick

Wow! Its been forever since Ive posted here on my blog! Thought this would be easier the updating my profile since they will only let you post so much. This won't be long though. Just an update for everyone! :)

Not the best past 2 days for me. Called in to my doctor yesturday after feeling pretty bad for over a week and a half. Turns out I waited too long to call. They hooked me right up to an IV in the office, and took some blood. My results showed I was dehydrated, malnourished, and very low on everything else. She admitted me to the hospital yesturday afternoon, and it took them 6 hrs and 4 different people before they could get another IV in! They have been pumping me full of fluids and sodium, and magnesium, and just seems like everything! I'm starting to puff up! :) Today they put in a PICC Line. Thats a flexible catheter "Peripherally Inserted Central Catheter" that is inserted into a central vein in the upper arm, goes up and around my should and down my chest right in close to my heart. It is semi-permanent and will stay in for the rest of the pregnancy. This will help me to be able to get home health care at home so I can do IV's by myself.....pretty cool! Bad part, its definately not pretty. Hey! its alot better than my ileostomy, and I wont have to keep getting stuck over and over! My blood counts were pretty low as well, and I have been having 2 units of blood pumped in me all afternoon. I have seen several specialists, and everything seems fine with the baby, so that is the good news! It really is true that the baby just "steals" everything it needs from mommy!!

My body just can't keep up right now feeding the baby and me while I am losing everythng through my bowels like water. I am absorbing almost 0 nutrients. I guess this will be a battle for me for the whole pregnancy. I asked for a time machine to fast forward these next 5 1/2 months :) haha

Thanks for listening! Just wanted to send out an update.....baby is fine, but momy is sick. Hoping to go home tomorrow or Saturday. Thanks for your prayers! 

Saturday, May 15, 2010

No More Bag!

Friday:
I wanted to briefly update everyone on my past couple days after surgery. David hasn't done as good at keeping everyone updated this time. :) The surgery itself went very well. It only lasted for a little less than 2 hours, and I was only in recovery for about an hour. That is a record for me! The thing that most helped with that is that I didn't have to have a catheter. Yeah!


Its been two days now post surgery and I am doing well. This surgery is the least invasive of all of them, and I have been so much more mobile. It's a good thing too because the toilet has been my best friend since my bowels started moving. I still haven't eaten much of anyting. Wednesday after surgery I couldn't even keep ice chips down very good without getting nausious. Yesturday I was on clear liquids, and worked all day to get one juice drank. After throwing up, and 3 doses of anti-nausia meds to get it down. Today has been a bit better with being so nausious, though they have still given me the anti-nausia meds to help anyways. So with the meds, I was able to eat a yogurt earlier today, and tonight was able to eat some grits. I still feel good, and am not sick yet. Yay!!


I have spent alot of time (as mentioned) on the toilet even though I haven't eaten. I have lots of gas and air stuck in the j-pouch that doesn't want to come out due to the surgery. I am not used to feeling the pain and urges of having to run to the bathroom in so long, and this part of the recovery has not been fun. Last night and today I spent alot of time in the bathroom. I can't say I wasn't warned that this is how I would feel though. I am very thankful in all the things that I was told to bring to the hospital. The soft TP, and cream have been key. Thanks!

Saturday:
Well here it is Saturday morning, and as you can tell I didn't get this post finished and posted yesturday. Once again I spent most of the night and all this morning in the bathroom. My stomach pains have seemed to increase. :( My doctor is out of town once again, and I have a fill-in doctor till Monday morning. He advanced my diet to a low-residue earlier this morning, but I don't feel ike I can handle it yet as of right now. I have been going on 3-4 long walks everyday which feels good on my back. David has been able to sleep alot better this hospital stay than the others simply because I havent had to wake him up as much throughout the night. He has been such a solid rock for me through all this,! I couldn't say enough about him and what an awesome husband, friend, and and provider he has been for me simply in the past year. God was so good to me in giving me such a wonderful husband! I am so thankful how much closer David and I have grown together in our 4 years of marriage.

Well I will update more next week when I get out of the hospital. I am hoping to be able to go home Monday or Tuesaday at the latest. Pray I can eat and keep the food down. Love you all!

Thursday, May 6, 2010

Answered Prayer

It has been a while since my last blog update, and I would like to explain to you the road I've traveled in these past few weeks. I will tell you straight up though.......my takedown surgery has been scheduled for Wednesday, May 12th at 3:30 in the afternoon!! I want to first and foremost give thanks to the Lord who has heard my cry and answered my prayer! (and when I say cry, I mean it literally)

I mentioned last time about the apt I had with my OBGYN. She looked over the results from my MRI and also did an internal exam looking very closely at my ovarian cyst. She concluded that it will eventually take care of itself. She told me that in a sence it would in time "roll over and pop" and the fluids from the cyst would dissolve into my body. She did say that it would be very very painful and wrote me a presciption for Vicaden. So thats that! :)

The problems I talked about last time that I've had with my stoma have only increased in pain and severity. My stoma itself is completely inverted inside now, and is pulling the edges of my skin inward along with it. This problem makes getting any sort of seal around that part of the skin virtually impossilble. David and I are dealing with it at least 2x a day. I really could use to change it more than i do to, but we have learned from trial error that it is just as painful and stressing to change it when I am active. It takes around an hour to change it at night and the skin is so much more irritated and painful and red than it is when we change it early in the morning. David now wakes me up before he goes to work every morning around 6 so we can do a much needed change then. Even then though, my skin get maybe a 30 minute break before the seal is broke once again, and stool is sitting on the infected area of skin. The infected/irritated area keeps growing as well with each day that goes by.

My surgeon told me over 4 weeks ago because of the problems I was having way back then that he would be willing to move the surgery up a month for me. Since then I have kept my eyes on and around week 8 post surgery. But 2 weeks ago I found out my surgery wouldn't be until May 24th which is right at 11 weeks. Only one week early from normal versus one month. I felt like I was hit in the gut when I found out I had to wait 3 weeks longer than I had been planning on. My doctors nurse told me that I would be on the top of the list in case somebody cancels or another day opens. I started praying hard that something would work out, because I really didn't know how I was going to wait another whole month! I found out that there was a possibility that my surgeon may be able to be in town to do it on the 14th. My eye was focused on that date. I prayed and prayed about it, and at one point I really felt peace that everything was going to be fine because it was going to happen. Just 2 days ago on Tuesday, David called the doctor's office and talk to them. He realized they were not very helpful at all, and he also got the confirmation that the 14th was not going to work out. Basically they told him, "Stop calling us, and deal with having the surgery on the24th!" When he told me, I broke down. The rest of that Tuesday was shot. I was very depressed all day long and just couldn't believe it. I asked the Lord over and over "Why?" David also came home from work that day in a bad way. We were not a very good mix on Tuesday night. He ended up staying home with me yesturday. It was then, in the morning, right after we had finished changing my bag that I got a call from my doctor saying that somebody had canceled their surgery, and that they had me scheduled now for May 12th! WOW, in just only one week!

After hanging up with them I started crying and screaming, and I was in utter disbelief. :) I went from crying and asking God why one day, to so happy and thanking Him the next. Thank-you Lord!! Thank-you!

So now, only 6 days away! I am starting to understand some of the things I will be facing for the first few weeks after this surgery. I know it will be hard, but I just have to look at it as one more step to getting better. Hopefully the final step in recovery. This will all include me learning the all the ways of my "new" body. I am ready, bring it on! I am just so very thankful that I don't have to live with an ostomy for the rest of my life!

Well thats all :) 6 more days of living with the pains of this ostomy. I can't wait to wake up from surgery, look down, and it be gone! I don't care about the scar it will leave. Actually I will welcome the scar. It will be a forever imprint of something I endured, something Ive grown through, something I will never forget. So thanks to my stoma....you helped me get to the other side!

Wednesday, April 14, 2010

Counting down the days



This is the first times I got "out" after surgery. We took grandma to Lady Bird Johnson Wildflower Center with my mom and Katie before she left. The day was one of the hottest we have had so far all spring, and I wilted very fast! :) It was still so nice, and all the wildflowers this year are just beautiful because of all the rain we've gotten. David sat with me half the time in the quaint little cafe there while I hydrated and got cool.


It was a special time with my family!

In my last blog update I explained to you the extreme pain has been for me, and wont repeat that in detail. All I can say is that the infection is continuing to grow. It is spreading further down and around my stoma, and changing the bag sometime is unbearable. David has been such an angel and is always so calm and patient with me. I don't think I could have done any better!! Something else that I have been battling is sleep. For some reason my nights have been restless. Often I lay awake for 2 hrs trying to be patient to fall asleep. But once I do drift off I wake up every hour and just can't seem to dose into that deep sleep. On top of it all the pain has its part of waking me up several time at night as well.

We are to the point of counting down the days till my next surgery. Of course though there are pros and cons to everything! The other night when I couldn't sleep I was on the computer reading for a long time about the long first weeks after the Take-Down surgery. I have to admitt that it have got me kinda scared. I am not looking forward to going through it all. I read that in a way it is harder mentally at times than physically. That for the first few weeks after take-down it is a sort of dea ja vue of living with the Colitis again. I know i can't get to the other side without going through it, but I am scared. Even in the know, I say Bring It On!! :) (well you can ask me about that in the middle of all the "butt burn" :) haha)

My doctor has me on some colesterol medicine that I am taking solely for the side effects. It is supposed to help thicken the stool and decrease the acidity. So we will see. My apt with the surgeon is in 6 days, and that is something else I just wish I could sleep through! When your doc tells you up front to take to strong vicaden before the apt, you know its going to be bad! Told David I need him there for me....."I don't want to sit there and watch you be in pain" he says. "Too bad!" I really need the morral support!

I have a dr apt tomorrow with my obgyn to talk to her more about the ovarian cyst they found in the MRI. I am very interested in finding out more about it, and also how much more of an effect it can have on me getting pregnant. I know chances are very low already. The surgeon told us that after 3 major abdomonal surgeries there is so much scar tissue in and around all the female organs it is hard to concieve. Now on top of that I find out about a large ovarian cyst. Its hard! Its so hard! David and I talk about it all the time and how different our lives would be if JoLynn were with us. I miss her so much my heart aches!! Will I be able to have another child to hold in my arms?....Only the Lord know.

Wednesday, April 7, 2010

Four weeks out...

I know that this post has been long in coming! Believe it or not about a week ago I sat down and typed about half of a blog update and then lost internet and lost everything Id written. And after that I couldn't make myself sit back down and type it all back. So here I am :)

Its been 4 weeks since my surgery. I am physically doing very well! I am getting around good, and feel stronger pretty much every day. I had a walker to help me around the house for the first 2 - 2 1/2 weeks, and whenever I would go out I would use a wheelchair or a riding cart to get around since I didnt have much strength or stamina on my feet. I made myself start building strength by getting around my house without any help first. At first it took me a while to walk anywhere, but after time (and lots of pain meds) I am free of all help. When Im out I dont use anything. I do get tired alot faster, but thats ok. I think pushing myself sometimes is good.

My grandma has been with me for the past 3 weeks and it has been such a blessing to have her here helping us! I don't know what shape me or my house would be in if it wasnt for her! I am back to being all alone though since she went home yesturday. Its up to me now! :)

Although everything sounds great up till now, Its really not. I am having some other problems that have set me back alot! I currently have a loop-end stoma which very different from the end stoma I had for the first 6 months. For those of you who really dont understand the difference it would be a waste of my time to try and explain it to you on here. Loop-ends are often much more problematic than simple ends, and...well I am having ever problem in the book with mine. Essentially mine ended up healing upside down. Instead of the bowel opening to be on the top where it can flow overtop the stoma, my opening in underneath, and the stoma is pushing the bowels straight down and onto my skin. Because of this it has been a nightmare trying to get a seal with the bag. I went last week to the hospital to see my stoma nurse. She gave us four different things to try, and every single one only made my infection worse and spead bigger. It has only been four weeks, and I couldnt begin to tell you how bad the infecton is getting. So as each day I get stronger, my skin and infection around my stoma only gets bigger and so much worse. The pain is unbearable at times, and sometimes I don't know how i am going to make it another day. But still the days go by, and still it gets worse.

I could explain the pain as a continual burning of acid, but thats hard for you to imagine. So maybe this...imagine 3 or 4 fire ants sitting on your stomach and it feeling as if they are constantly eating away at your skin and there is nothing you can do about it. You just have to let them hang out there...eating away. Thats kinda what its like at all times, and then at times its so much worse! Like last night. At this point, I have a big open wound that ever day I am trying to clean and then after cleaning (which is so very painful) I try to put glue or sticky stuff on top of it to reattach the bag. This is where the problem is lying. It is almost like trying to use scotch tape on a wet surface. No matter what you do, its just not going to stick. We went through 3 good bags last night....on off on off on off. Finally with the fourth one we gave up. As I sat there and looked at it after many tears and so much frustration, I began to pretty much laugh. I could see and feel the output stream right down and under the seal we had worked so long and hard for. I looked up at a very tired husband and said, "what are we going to do?" Now, I am not typing this for sympathy....it actually feels good to write it out. To put what Im facing right now down on paper.

Maybe you are wondering what the doctors can do for me. That surely there is something that they can do! Honestly there isn't. Its just something I am going to have to deal with till I can have the thrird surgery which is the let-down. Yesturday I had my first post-op apt with my surgeon. He right away agreed with us that it is pretty bad and that he is willing to move the surgery up by a month. This means I will be having my third surgery in apx 4 more weeks. This sounds like good news, and I know it is, but all my mind is wrapped around is the 4 MORE weeks of this pain and misery that I am facing right now. I really dont know how much worse I can get, and how much more I can handle. The pain wears on me so much, and I am finding myself very down every day. I think that right here and right now I could call myself depressed. I just want to go to sleep and not wake up till its all overwith.

Im sorry that this update is all about hurt and pain. It is to you all, though, who I can tell the truth. I know I have so many people out there praying for me and rooting me on. It is those small things, the texts, the comments, the letting me know they are there and praying that really gets me through every day. I really appreciate it!

Ps. I really really do appreciate the comments, so keep them coming! :)

Saturday, March 20, 2010

Surgery Updates

Hello everyone! It is right now 2 days shy of 2 weeks since my surgery. I have been through alot, and come so far since then, and yet I still have quite a ways to go. For any of you who really know me you know that I am full of life. I am the one always wanting to get out and do something, the one who is singing loudly with music in the backround and trying to get David to dance with me around our living room. I love to laugh and smile, and I love being with and spending time with my husband. Yesturday I came in to the bedroom and looked at David laying there and just smiled. With everything I had I wanted to run and jump on him and just laugh and have fun with him. Instead, I slowly and painfully crawled up there next to him and we just sat and talked for almost an hour. Now don't get me wrong, because I am a girl, and I do love to talk to! :) I guess my point in writing all this, is I miss having fun, and playing around, and I miss simply laughing (because even laughing hurts!). This is the point in my healing when I start to get very impatient with myself! Just get better already Jeessica! :)

Details...details! :) Well, first may I please correct David in his last blog post and say that he did not get to come see me till Thursay morning! :) That small peice of information is very important to me because those first couple days seemed like forever before I could see him! My biggest setback this time through was nausia, just feeling so sick. Every single day for 8 days straight after the surgery I was very sick and couldn't eat. Just the smell of food made me sick.I only vomitted one time, but was taking nausia meds 3-4 times a day to help prevent this because throwing up after abdominal surgery hurts like crazy! 

I also developed an infection around my incision which is still to this day bothering me. The infection built up inside to the left of my incision. It almost looked to me like a ball was sitting on the inside of my belly the way it protruded out. When i told my doctor about the pain he said, "Yes, its called a major surgery!". He didn't seem bothered by my odd pains. The next fill-in doctor I had is the one who found the infection, and started me on antibiotics. He was very nice, and I was very thankful for him. The 3rd doctor saw the swelling in my stomach and told me it was just a gas bubble. Well after living with UC for over 6 years I could have told you that it was NOT a gas bubble! "Won't you doctors just listen to me! I do know a little bit about my own body!!" The day after I came home my "gas bubble", which was in fact a swelling of infection, decided it needed to leave my body. (sorry to be gross) A spew of infection and blood broke one of the stiches and flowed out of my body. For two days straight there was a slow continual flow. Thankfully this was a good thing, and really nothing to worry about besides the added pains it caused.   

The second doctor that saw me over the week-end was very nice, he actually listened to me, and he is in fact the one who started me on a medication called Reglan. It regulated the bowels to get them moving in a forward motion. The ordinary nausia meds obviously werent doing anything for me. I needed something more! Thank-you doctor Cline for hearing me, and finding the infection, and for finding the med which essetially helped me to be able to start eating!

So still with the infection, and just at the beginning stages of trying food it is Tuesday the 9th day after surgery. I was just sooo ready to go home. David had to start back working, and I was at the point where I felt like I was getting depressed, and crying over everything. It didn't look promisimg for me to get home till probably at least Thursday. The doctor came in and talked to me for a while (seeing the "gas bubble" :) ) and asked me "when do you want to go home?" I looked up at him feeling like crying and just said "NOW!". He looked at me and said I think I can work that out. Oh my word! I felt like screaming, and crying and laughing all at the same time. All of my meds that I was on through IV could be taked orally, and he said that they could monitor me from home if anything else happens.

Long story short, I got to go home! :) Do you hear the smile in my voice? :) I think David was almost as excited as me. He was getting exhaused staying with me at the hospital, and then waking up and having to go to work. So there it is for now. I'm home, and for now, that in and of itself just makes me happy!

I will continue the update from my home healing maybe tomorrow. Thanks everyone for your continual prayer, concerns, texts, calls, and love. I couldn't be more grateful!

Friday, March 12, 2010

Friday 3/12/10

Well its Friday and we have come a long way. Monday after the surgery it took a long time for Jessicas kidneys to kick in so she was in post surgery care till around 10pm. At which time they sent her into IMC (Intermediate Care) She didnt get to go to a normal room like last time. They still wanted to keep an eye on her. Mom and Katie, Dad and Mom Ronson all went ahead and went home since it got so late. I got to go down and see her in the post surgery room before I left for the night. Visitors cant spend the night in IMC.

To make things worse I got sick that night with body aches, stuffy head, and a sore throat. I didnt get to see her till Wed morning after I was better.

Last night she went for her first walk. It went well.And this morning she is in getting an MRI. Thought I would throw this together while I am waiting for her to come back. I am sure she will rearrange and change all this later. Thanks for reading.  

Monday, March 8, 2010

Post Surgery

Well its 9.30pm and Jessica is still in the recovery room. The surgeon said that things went great. No complication, and she was fully recovered from the UC. Unfortunatly she is dealing with a lot of pain and lack of urine. They have been getting the pain under control since she go out of surgery but now her kidneys are not kicking in yet. Apparently this is nothing to be concerned about, she had this problem last time as well. The kidneys have something to do with your urine flow. So, with all that, Lord willing she will be here in her room with me getting some rest. Thanks for all your prayers, concerns, and texts.

Sunday, March 7, 2010

Infection

Two days before surgery....

I have been suffering with a head cold for almost 3 weeks now, and at my pre-op apts my doctor checked me very thoroughly. He said he can deal with upper resperatory stuff as long as my lungs are clear. Thankfully they are. Yesturday I had a few errands to run and have a list of things to get done before I go in for surgery tomorrow. Early afternoon, while driving, my ear had a bad surge of pain. Then it started to feel like there was alot of pressure building up. I kept trying to yawn and swallow to get it to pop. Unsuccessful, my ear just started surging with pain, and soon I couldn't hear anything out of it. In just a period of 2 hrs I couldn't believe how bad it got! And I started to get kinda worried.

Long story short, it ends up that I have a full blown ear infection. No wonder it hurt so bad! I am very thankful I went in to a Ready Clinic to get it looked at. The doc gave me a topical presciption for it so as not to interfere with the surgery. With that and Advil I feel alot better this morning! Thank-you Lord!

That list of things that I need to get doone is not getting done today with me being sick....Oh well :( Guess its most importent for me to be well.

Would appreciate an extra prayer for this infection to go away, and fast! Can't believe that my surgery is here. Still don't know that I am mentally ready for this. Ready or not here it comes! :)

Will have David update my blog on how surgery went. Thanks so much everyone for your care and concerns, and most of all your prayers!!

Friday, February 26, 2010

Getting Antsie

A friend asked me this morning if I needed anything before my next surgery. I asked her if she had any patience I could have... :)...in a way I totally mean it! As this next surgery gets closer and closer I find myself getting more nervous and antsie everyday!! But then I still have one LONG week of waiting (and lots of work) to do before ... before I am helpless again an have a long stretch of recovery.

There are definately two side to these feeling. One being the fact that I just want all of this behind me! I will not post another blog update about leakages, but let me just say that they are part of my life right now, and something I have to face while I still have this ileostomy. So there are times when all I want is to just be done with all this, and fast!

The other side is what I am feeling more strongly as the days grow closer to surgery. That is the fact that I am submitting myself to what I now know will be the outcome of a major surgery. That outcoome is weakness, and helplessness, and pain...lots of pain, and new trials to face (eg. the ileostomy) with each step of this long process to recovery. 95% of the time my eyes are on the end...the strength and wellness of what I will be when this is all over and I am my new "normal" as a J-Poucher! Right now its on the present, and right now the present is scary to me!

So please, as you all did so faithfully last time. Pray for me. I need alot of it right now. And if any of you have any of that patience I was talking about earlier that I could have, please just send it on my way!! :)

Thursday, February 18, 2010

Time Flies

It has been 3 months now since I have updated my blog. Wow! Time flies right on by! I will be back updating for you all the progress and recovery of my next upcoming surgery. My total reconstructive surgery is scheduled for Monday, March the 8th. I am very ready and anxious to get it done and behind me. Dont get me wrong by thinking I am excited....I just am ready to take the next step painful though it might be. I am definaltely not looking forward to the recovery of another major opperation.

My grandmother is coming down again after the opperation to help me again. What a blessing! Her help is a God send to both David and I!

Will you all let me take a minute to gloat on my wonderful husband David? :) God knew just the right man for me! David is so even tempered, selfless, encouraging, so sweet and patient!!! He as been there every step of the way for me, and not just there, but continually going the extra mile to make sure that I have everything I could need. Throughout the years of my colitis I could not begin to explain the sweet patience he gave to me. And now with my ileostomy he tends so soft and patiently to me I sometimes am still in awe of how wonderful he is!!! I sure hope that one day I can repay to him every kind and tender love that he has so willingly given to me!!!

Imagine a stong and healthy 25 year old young woman, and that would be me! :) I havnt been able to say that about myself since I was a teenager in highschool! I honestly had forgotten what it was really like to feel "good". So many times that would be my reply to the everyday question "how are you?", but it was never the truth. I really can see now how sick I really was. Every single day for over 6 years I had gut wrenching pains over...and over...and over. I never slept through the night, and running to the bathroom in terrible pain seemed to just be my "normal". I am so excited that these past 3 months of my life I actually feel good! I have gained weight (maybe a little too much :) ) and been able to exercise and gain some muscle.

This next surgery, in my mind, is just another step to the new me! :) I am very thankful that I did not have Crohns, and that this ileostomy is just temporary. I can not imagine having to live with it! I dont know why, but I seem to have had alot of problems with mine, and am hoping that this next loop-end wont be worse (as I have heard it can be). I just went to see Dr. Graves on Monday, and he said that I only have to wait 3 months between these next surgeries. I am excited about that! I am hoping to schedule my let down surgery for the end of May.

David and I had a wonderful Thanksgiving and Christmas together!! My sister had her first baby boy on November 20th, and I was able to go to Pennsylvania in January to go meet my nephew Andrew Joseph. 



Thanks for everyones prayers for me! I truly appreciate every one of them!! Please don't forget about me through this next one! :) Will be talkin to you all more on here! Take Care!!

Tuesday, November 17, 2009

So Happy!

I recieved a call last night as I was busily trying to get supper ready for company. As soon as I answered it my heart went up into my throat. It was Dr. Graves. The deatailed testing for the Crohns that he ordered had been in the labs for over a week now, and we have been anxiously awaiting the results. "But why is he calling me", I thought immediately. Normally I would hear back from his personal nurse. He started by asking how I was doing, and some other filler questions. My mind was wrapped around just getting to the point of the call, and I knew what that was....the tests. He finally came out and told me that the final test shows that it is Ulcerative Colitis in the small intestine which is just the backwash ileitis which will heal itself in time. The tests were conclusive that Crohns was negative! Praise the Lord!! It was all I could do not to scream on the phone. He said that we will just proceed on as planned with the next surgery which will be the reconstruction. I go in just before Christmas on the 23rd, and we will then talk about scheduling the next surgery. It probably won't be till February or March, but I am just so very happy and thankful that it is certain that I don't have Crohns! I have to take the time to thank each and every one of you for your prayers for me. Know that they have not been in vain!

Now for a quick update of the past couple weeks. My strength has come back pretty much all the way. I am doing very well. I have had a few more problems with my ileostomy, and those times have not been fun! It has been very important to have a backup kit ready in the car, and has been very useful. I just recently made the first ostomy order, and hope that I can find something that works for me. All in time.... A couple weeks ago I woke up with what I thought were some bites on my neck. They hurt though instead of itching, and I kept getting more of them as the week went on. It turned out that I got a mild case of the shingles. I only have 8 pockets that are spread out along my right neck and shoulder. I got an antibiotic started to help with the pain, and also help them not to spread. I can't believe how painful just this small case of them is. It is sharp pain all the way to the bone! I am still fighting them to go away. It just takes time apparently. On Saturday David and I got our Christmas pictures done. I am proud of myself that I am on top of it this year! :) The picture below is a sample. My grandma left to go back home on Sunday. I couldn't begin to tell what a blessing it was to have her here and all her help! She will be missed!

I hope all of you have a wonderful Thanksgiving with friends and family! Don't forget the Lord in the hustle and bustle of the holidays. He is the one who deserves our Thanks!!



Thursday, November 5, 2009

Helpless

I grab my Bibile and purse, and head out the door on Wednesday night. I was meeting up with my family at Johnny Carinos for a nice dinner before church. The whole drive in I couldn't wait to see my wonderful husband, and give him a kiss. I just love their bread dipped in the olive oil, but made myself eat only a little, and started my meal with a sald.

That is when it happened. Right in the middle of dinner I started to feel a trickle run down my stomach and onto my leg. I looked over at my husband and said, "I need help...FAST!". I stood up and started to quickly make my way to the bathroom. David snatched my purse and followed behind me as I ran into the bathroom and locked myself in the stall. My skirt was the first thing to come off, then my shoes, and then my underwear. I just stood there for a while and looked down at myself. All I could do was start crying. I felt so extremely helpless it scared me. The plastic seam of my ileostomy had somehow torn, and....well, lets just say it was gross and I felt miserable! I had nothing but toilet paper to help me out. My mother-in-law got me one of the restaurants cloth napkins, and I cleaned up just enough to make a quick exit out the side door, and into the car David had pulled around for me. As soon as he closed my door I started sobbing....it was the worst feeling in the world! He drove very fast and crazy to get me to my moms house (the closest place) where I was able to get into the shower and clean off good. We had a back-up kit in the car with all the stuff to change my ileostomy, so it all worked out ok in the end. Even after I was cleaned up and ok I still found myself with tears running down my face. It was a terrible night, and one I hope to never repeat!

One Day at a Time...

I do remember in my last blog update that I promised a picture. Here is a recent one of me and my wonderful husband at a wedding we attended on the 24th of October....which also happened to be the day of his 26th birthday. He does look rather handsome if I do say so myself! :)






The past week and a half has went by in a kind of blurr. It has been a time of testing my strength, pushing myselff to do more than I probably would have just being at home. Overall, my efforts have been for the good. There were some days that I pushed myself a little too much, and paid for it the next, but in the case of doing it over I wouldn't change any of it. I was able to go to my second cousin's rehersal dinner, and wedding. It was so good to see and talk to everyone from my dads side of the family. At the time I was still quite weak, and didn't have much stamina to stand long or walk far. I refused at the beginning of the night to use the whealchair, but halfway through the night and only making it halfway down a long path I gave up. The rest of the night I stayed sitting down in the whealchair, and watching all the excitment go on all around me. I wanted so bad to just get up and be strong and healthy like so many there. It will definately be a night to remember, but it did take all my strength from me.


The very next day started our churchs' anual Mission's Conferrence. Growing up, this week was always one of the highlights of the year. As a teenager, and in college we were always right in the center of doing the decorating, being in singing groups and chiors, and helping with plays. For anyone, this week would put its tole on you, but it was always worth it. It was very hard for me this year not to be involved in anything that took place for the Missions Conference. Last Year we kept a wonderful family to Brazil in our home with us, and just fell in love with them and their field! I remember telling David way back in the summer to remember to talk to someone early about keeping another family at the Missions Conference for this year. Not only could we not keep anyone, but I couldn't take part in singing, much less attend every night. I pushed myself to go as much as I could, and only missed 2 nights. It is such a testimony to see so many families with their hearts wholy surrendered to God. The Lord really helped me to see how my life (albeit an unhealthy one) can affect so many others around me, and that through it all I can touch lives only I would every know. How true it is that I must keep strong in the Lord no matter how down I get at times. Down isn't really a very good adjective to use either. Throughout everything I've come through I have faced some pretty serious times of depression! There have been days and nights I lay weeping into my pillow....evenings full of pain and hurt both physically and emotionally. Down is just a nice way of saying that I struggle everyday with keeping my mind and heart set on the Lord, and that in the end there is a perpose in it all.


Last week I had my first post-op visit to my doctor. I didn't recieve the best news ever. He wants me to wait at least 6 months before I have my second surgery instead of the suspected 3 month wait. Along with that, he talked to me about the possibilities still that I might have Crohns. When I was in the hospital they did a tissue test to see whether or not I had the disease in my small intestine. It came back negative, and we've been thankful about that ever since. My doctor told me that he wasn't convinced with just that one test. He has had over 30 years plus of experience doing these surgeries, and he said that the way it looked and felt to him while he was in there just set a red alarm to him that it was Crohns. He has ordered more detailed testing to be done before he will be convinced of it, and give me the ok to go on to the next surgery. Please pray hard with me that the results remain negative. Keeping my ileostomy for life isn't something I want to have to get used to.


In just the past two weeks my strength has increased alot. I can feel my back and stomach muscles getting stronger everyday. I have been trying to stretch the muscles in my stomach, and fill my lungs full of air. Ever since the surgery, my lungs haven't been at full compacity. At first it was hard to breathe, and hard to talk. Slowly it has gotten better and better, but it still hurts to yawn deep and cough. The stretching has helped to open it all back up. My membership at 24HR fitness has been frozen, and we just unfroze it so I can start working out and getting all the muscles in my body strong and ready for surgery #2.


This past week I started having problems with my stoma. My stoma has been shrinking so the seal from the ileostomy hasn't been holding strong. Because of this all the skin around my stoma is very irritated and beginning to become infected. I have called my doctor, and will be going to see my stoma nurse soon. I hope she can help because it is very painful!


My thanks and love goes out to everyone of you!







Thursday, October 22, 2009

Catching Up

I haven't been sleeping well at nights at all. In fact it is 3:14am right now, and here I am on the computer. Last night as I layed in bed unable to fall asleep I began to think about how far I've come in the past 3 1/2 weeks. I find that I am getting very impatient with how slow my recovery has been, reminiscing helped.


 I remember having to have 2 poeple help me into bed because I couldn't lift my legs up or scoot myself back....now I am getting in and out of bed with no help at all. I remember having to have help to make it to the bathroom every time and to sit down....now I can go and sit all by myself. I remember what a chore it was to take my first few showers having both moms do everything and wash me....now I can shower myself (with the help of a hand held nozzle and shower seat :) ). I remember how bad it hurt to simply talk those few days, or even laugh or sneeze or cough....now it isn't pain free, but very doable. I remember all the heavy pain meds I was getting around the clock....now I am almost cut completly off of the vicaden and subbing everything with Tylenol and Aleve. I remember what a chore walking the halls at the hospital were, and now I am able to walk around the house slowly without any help. I remember not being able to eat or keep anything down....now I am eating myself out of house and home! :) I could keep going on and on with every small thing that has improved in the past weeks of recovery. Thinking back on all these things helps me to see how far I have come. I am still FAR from being strong and where I want to be, but it is important to me that I not get down, or if I get down not to stay that way. The road ahead is still very long, and I have found it best to just take it one day at a time and not think into the future at starting over and over again.


I mentioned in my last blog update about my sister Stephanie's visit. She left her family in Pensylvania and flew down to be with me for a few days once I got home from the hospital. What an amazing time we had together! I cherished every minute. She is expecting her third baby in Novenmber, and it is finally a boy! We are all very excited to finally get a boy in the family. Us girls definately dominate! Steph was so good at helping me. She was here for the first home ostomy change. She helped David at changing the bag for the first time without help from the nurses. They both did awesome, and was so gentle. David had already been introduced to it all, but it was all very new to Steph and she handled it so good. She was there to help me shower. She helped cook and clean and grocerie shopped, and patiently put up my fall decorations. (putting up with my pickyness) :) I could list even more things about my grandmother being here to help me this whole time. David and I don't know what we would do without her!  I am very lucky to have a wonderful family!


Sometimes I sit and look down and just stare at my new friend that is now a permanent fixture on my stomach. I am still not used to it. I hate looking at myself in the mirror and seeing what I now look like. I hate picturing how my husband sees me. I have a bag of poop hanging from my stomach.....how can he aver look at me and think that I am sexy again! I have many times apologized over and over at how I look, and how he has to sacrifice so much for my sake. I am so tired of it being about me already! Through it all he is there. So gentle and caring...so calm and that rock that I need. He is so wonderful to me, and I am very lucky! Back to my stoma, whom we started calling SID. (my Small Intestine Dilemma) :) SID can sometimes be very active at the wrong times. I have absolutely no control over him...he has his own mind. :) Sometimes he is very loud, and makes loud noises. It is very embarrassing! One of the times pastor was in the hospital visiting us it started making tons of noise. Gurgle gurgle gurgle...so loud, and all I could do is sit there and feel my face flush bright red. Another thing about it is that I can feel every output. It's a very wierd feeling. The bag gets in the way alot, and I am constantly aware of it. Any time I am out I feel like thats all anyone sees. My husband assures me it isn't that noticeable, but I don't believe him. :) All these things are still very new to me and will take some getting used to. How very thankful I am that this is not a permanent fixture in my life. How thankful I am that I do not have Crohns!!


Alot of poeple are asking what I can and can"t eat right now. For the first 2 weeks after surgery I was limited on some foods. Not anymore! :) I am actually eating alot! I am trying to get a good amount of protien at each meal. One of my doctors main concerns is that my protien levels get back up. I was very malnourished and anemic going into surgery. Part of the recovery requirments is for me to get all those numbers back up to normal. The doctor won't think about doing the next surgery till that happens. Water is another very inportant thing right now. I have to make sure to get alot of fluids down me so I don't get dehydrated. The job of my colon was to take the liquid out of the waste. It isn't there to do its job anymore, so I have to compensate for it by drinking lots. My grandma is very good at keeping my glass full and encouraging me to drink more. I gained 4 poulds the first week after I got home, and started getting worried I was going to gain a ton of weight. :) Don't know why, but I lost those four pounds and am staying at a steady weight of what I was before. I am eating alot, and getting stronger so I'm not gonna worry about it. It's just a number on a scale, right!


Day after day is passing by, and one of the hardest things for me is being cooped up. I get really antsy at seeing the same four walls. I also have to bum a ride off of everyone since I can't hop in the car and do what I need to do. I have been able to get out some, and am very thankful for each time! My imune system is still down, and so getting out at all is always a risk. I cannot afford to catch any sickness going around. I took up cross stitching to help pass the time. It is very time consumong, but I am enjoying it.


This past week my mom went up to Pensylvania to visit Steph and the girls. Katie was with us for the week. It was fun to have her here with us! She was able to come with me to church for the first time since my surgery on Sunday morning. It was so good to be there! You really don't realize how much you miss going to church till you can't go for weeks on end! I am continually reminded at how good god is! I have had a song stuck in my head..... "God's so good to give us so many blessings underserving thats what we are...we are to thank Him love and praise Him a little more today, a whole lot more tomorrow." A little song, but full of great truth!


In just these past few days I have been working hard at stengthening my core muscles back up. I am doing good at making it around the house without any help at all. I can't wait to be free from the walker that has helped me so much. The only thing is that my back is taking a tole from not having help. My low back muscles are very sore! Once again, its just about taking it one day at a time. Each day is different. I have my bad days, and better days. All in all I am doing good. One of my small incisions on the right side lost its stitches today. It looks really good, and is healing smoothly! We have a wedding to go to this weekend, and then starting Sundady is our churchs' Missions Conference. In my next blog I will post some pics on how I am looking these days post surgery. Friday will be four weeks already! Time really does fly!


I think this blog update will finally catch me up. Thank-you everyone for all the prayers for David and I! Please don't stop!! :) We are truely grateful!!